Table 3 Proxy decision-maker types, subtypes, and numbers mentioned across CT publications and supplementary material

Total

77

(100.0)

Parents

30

(39.0)

Unspecified parents

23

(29.9)

- Unspecified number

15

(19.5)

- One^a

8

(10.3)

Mother

4

(5.2)

Mother involving fathers/partners/husbands involved in the decision-making

1

(1.3)

Mother able to understand study procedures and give consent/of a specific age

2

(2.6)

Parents or guardians

28

(36.4)

Unspecified parents or guardians

21

(27.3)

- Unspecified number

13

(16.9)

- One^a

6

(7.8)

- At least one

1

(1.3)

- Each

1

(1.3)

Parents or legal guardians/legally acceptable representatives

4

(5.2)

- Unspecified number

2

(2.6)

- One^a

1

(1.3)

- Each

1

(1.3)

Parents or guardians of legal age/adult/with the ability to give informed consent

3

(3.9)

- Unspecified number

2

(2.6)

- One^a

1

(1.3)

Caregivers (incl. Caretaker, carer)

10

(13.0)

Unspecified caregivers

5

(6.5)

- Unspecified number

3

(3.9)

- One^a

1

(1.3)

- At least one

1

(1.3)

Family

3

(3.9)

- Unspecified number

3

(3.9)

Primary caregiver (Mother/Father/Legal guardian)

2

(2.6)

- One^a

2

(2.6)

Guardians

9

(11.7)

Unspecified guardians

3

(3.9)

- One^a

2

(2.6)

- At least one

1

(1.3)

Authorised/identifiable/legal guardian

5

(6.5)

- One^a

3

(3.9)

- At least one

2

(2.6)

Guardian capable of providing consent

1

(1.3)

- One^a

1

(1.3)