Table 2 Coding tree
Core categories | Sub categories |
|---|---|
Print media | Books |
Brochures/leaflets | |
Television | |
Helpline | |
Internet | Non-specified |
Patient organization | |
Medical facility | |
Encyclopedia | |
Social media | |
Scientific database | |
Email/newsletter | |
Personal contacts | Center for rare disease/specialized clinic |
Primary care doctor | |
Pediatrician | |
Specialized doctor in outpatient practice | |
Parents | |
Social worker | |
Patient organization | |
Other affected persons | |
Congress | |