Skip to main content

Table 2 Coding tree

From: Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

Core categoriesSub categories
Print mediaBooks
Brochures/leaflets
Television
Helpline
InternetNon-specified
Patient organization
Medical facility
Encyclopedia
Social media
Scientific database
Email/newsletter
Personal contactsCenter for rare disease/specialized clinic
Primary care doctor
Pediatrician
Specialized doctor in outpatient practice
Parents
Social worker
Patient organization
Other affected persons
Congress