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Table 4 Example of sub-categories and codes

From: Factors impacting the illness trajectory of post-infectious fatigue syndrome: a qualitative study of adults’ experiences

Sub-categories

Unhelpful medically-related external factors

Unhelpful internal factors related to the participants

Codes

• Lacked knowledge

• Strained medical encounters

• Misdiagnosis

• Delayed diagnosis

• Trivialized the participants’ symptoms

• Attributed symptoms to psychological causes or other conditions

• Recommended unhelpful treatments and management advice

• Lack of support to the participants

• No established system of internal referral at the hospital

• Lacked knowledge

• Trivialized own symptoms

• Attributed symptoms to a common enteritis that would pass by itself

• Attributed symptoms to a nervous stomach

• Lack of understanding of having a serious medical condition

• Difficulties understanding what was wrong with the body

• Tried to fight the condition off by trying to live pre-morbid life

• Lack of acceptance

• Denial of reality

• Lost control over the body

• Overestimating own capacity

• Unable to reflect on own needs and acquire help as needed