Theme | Description |
---|---|
Emotional experiences of having a child with CL/P | Mother • Self-blame • Shock • Feeling Scared • Crying • Acceptance of the child Partner • Acceptance of the child • Denial of the child • Supportive Concerns about • Speech • Schooling • Long term well-being |
Reactions from family, friends and the public | Family and friends • supportive Public • Gossiping • Staring • Asking lots of Questions |
Burden of care | • Feeding needs and challenges • Need for full-time and extra care • Many hospital visits - Transport costly - Frequent time off from work - Inability to work |
Health system responsiveness | Health provider attitudes and behaviour • Pleasant attitude • Rude behaviour • Caring attitude Treatment provision • No payment for treatment • Satisfied with treatment • Lack of resources for mothers Inadequate or lack of communication • Little or no Information • Inadequate Counselling • Little or no explanation |
Social support services | • Lack of public awareness • Nuances of counselling |